What was your understanding of autism before your diagnosis?
I didn't have much of an understanding of it, I guess it was generally the stereotypical male presentation. I knew autism could include social difficulties, being literal-minded, liking routines, special interests, often sensory issues, repetitive actions (what I now know is called stimming), sometimes non-speaking and sometimes high support needs. I knew enough that it made sense when my family suggested I might be autistic. I've learned a lot in the last year.
When / where do you feel most happy? Why?
In nature, because it's beautiful and fascinating and I love it. At home, because I'm a homebody and an introvert. Dancing at a ceilidh, because it's the most fun ever and gets me out of my head for a few hours.
What's the best piece of advice you've ever been given?
Well, the trouble with me is that I rarely follow advice. I've been given / heard / read plenty of good advice and motivational quotes and such things. Things which I know make sense. But I just can't seem to make myself do whatever it is. I've probably followed lots of little everyday bits of advice over my life, but there isn't a big piece of advice that has stuck with me, a simple yet profound truth that I live my life by, or anything like that. Actually the answer to this question is probably just the advice to go to my GP about my depression and ask for an autism assessment referral at the same time.
What's the best compliment you've ever been given?
I'm not sure. Three things come to mind:
1) People complimenting my writing is always great, and the biggest compliment I've had regarding that is the response to my blog post about my autism diagnosis last year. To date it's had 273 page-views, and while that isn't 273 individual people, just page-views as some would have read it gradually over multiple sittings, it's probably still over 100 readers, when most of my posts get somewhere between 5 and 20 page-views. My family and friends shared it on Facebook so that people I don't even know have read it, and I've had feedback that it's helped other people understand themselves better, too, which is wonderful!
2) Someone once told me they liked how natural, simple, and honest I am in terms of my appearance. (I don't wear make-up or nail varnish, don't dye my hair or style it, don't have any piercings or tattoos, rarely wear jewellery, etc.) I've been told many times that I'm beautiful but while that's nice I don't really care. Someone noticing and telling me they like my simple authenticity, and how it has the bonus of being subtly subversive and rebellious, was a real and lovely compliment which made my day.
3) Back on New Years Eve when my mum and I went to see Greta Gerwig's Little Women at the cinema (BRILLIANT FILM!), my mum said to me "You're like her" - meaning Jo March. That put a massive grin on my face! Who wouldn't want to be compared to Jo March? She's awesome!
...I know that's three answers when one would suffice, hahaha, but I'm terribly indecisive.
If you had a dog, what would you call it?
I've never thought about this because I'd get a cat if I got a pet. (I'd consider a dog, but definitely a cat first.) Not that I've thought about what I'd call the cat, though. I think it would depend on what breed it was, what it looked like, what sort of personality it had, etc. Having just had a quick look at a couple of suggestion lists online, I tend to like somewhat old-fashioned and/or quirky names: Rosie, Matilda, Topher, Pepper, Taffy. I'd call a female black cat Mab, though, after the fairy queen.
If you had a baby, what would you name it?
I wouldn't have a baby. And in case anyone thinks "Okay but hypothetically, if you did have one what would you call it?" - my answer is a valid one. I've known since I was a child myself that I don't want to have children. To quote the wonderful Helen Mirren, "I have no maternal instinct whatsoever. Motherhood holds no interest for me." So I've never given this sort of question any thought. A bit more seriously, this is something that I feel strongly about, and I follow a few Facebook groups/pages for childfree-by-choice women, and those who campaign for women's rights around the world. On one level, even in the UK much of society still can't separate womanhood from motherhood, and react with disbelief, invalidation, and judgement when a woman or girl says she doesn't want to have children. We hear things ranging from the almost-automatic "Oh you'll change your mind one day" to "You're selfish" and worse. A simple "Okay, fair enough" instead will do just fine. But thankfully the UK is still a place where people like me are able to make that decision for ourselves and I count myself lucky. There are countless women and girls all over the world who have no control over their sexual and reproductive lives and what happens to their own bodies.
What's your biggest fear?
I tend to avoid thinking about, or even identifying, what I'm afraid of. There's a lot. I guess the biggest ones are being in an unfulfilled rut and depressed for most of my life, being chronically lonely, getting seriously ill, and dying slowly and painfully or just horribly.
What's your favourite instrumental / classical / non-vocal piece of music?
I love classical music, but don't know it well enough to have an educated favourite piece or composer; my favourites are popular ones like The Lark Ascending by Ralph Vaughan Williams and The Planets: Jupiter by Gustav Holst. I love instrumental folk music too, and 'epic music' too. And soundtrack pieces, I have a lot of those in my collection and listen to them often, so here are my top five instrumental ones of those in no particular order. Most of them I know well enough to recognise them by the very first note...
- Overture from 'Robin Hood Prince of Thieves' - Michael Kamen: https://youtu.be/AGSev1mOSfg This always puts a smile on my face!
- Farewell from Disney's 'Pocahontas' - Alan Menken: https://youtu.be/_EHCOJ8g_9Q Probably among my favourites just because it's one of my favourite films. It's beautiful and sad.
- What Are You Going To Do When You Are Not Saving the World? from 'Man of Steel' - Hans Zimmer: https://youtu.be/HH1l5okI9mE
- Kingdom Dance from Disney's 'Tangled' - Alan Menken: https://youtu.be/chppF5jqKNw My favourite scene from that movie too!
- Reel Around the Sun from 'Riverdance' - Bill Whelan: https://youtu.be/OR4FiK-ar7w
What's the most creative thing you've ever done?
Probably this blog, as writing is creating, and my photography. Although I guess there's also something pretty creative about half-creating some characters and a vague fictional storyline in your head and attempting to write it down.
When were you right at the end of your tether but pushed through?
I'm not sure. I tend to avoid things, so it's hard to even think of some times I've been near the end of my tether, because I don't let myself get there. Either that or I block it out afterwards and forget. Or I just compare too much and don't think I'm near the end of my tether because it's nowhere near as bad as other people's. Maybe my depression. The worst time was the second half of 2018. My work at the time was part of the problem and I ended up calling in sick quite often because I just couldn't face going in, then self-certified off for a full week in the end, just before Christmas. But I had to go in most of the time, and got through the days. In the first week of January I got a new job and was able to hand my notice in, so I knew I just had four more weeks to get through.
Can we read some of your writing?
Well, this blog is my writing! Haha. No, the person who asked this meant the story I mentioned in the answer to the 'favourite song' question in my June Q&A - the story that's been with me since I was very young but I've never finished. I've never really started it, not properly - all I have written down are just everyday scenarios, I don't have a proper plan, or any ideas of truly interesting happenings like challenges, and I don't even really know the characters' characters well and how they could develop and grow. So no, it's not something I want to share, sorry.
Will you play D'n'D?
Hahaha. This was asked by one of my friends who has for many years been trying to get me to play D&D with him. (For anyone who doesn't know, DnD / D&D / D'n'D is Dungeons & Dragons, a fantasy tabletop role-playing game/RPG.) I've always thought I'd be hopeless at games like that. I'm hopeless at many games. He did persuade me last year to join a Star Trek tabletop RPG... but I just spent the entire time five hours utterly baffled and slowly shrinking into my chair, haha. Decision-making and improvising are most definitely not my forté. So the answer to this question is, I have no plans to agree anytime soon.
If you won tens of millions of pounds on the lottery, what would you do?
Go on some family holidays. Buy my own home, in the countryside or on the edge of a lovely village or market town, with a bit of land that I could use a small part of for a kitchen garden and flower garden and rewild the rest of it. Fill that home with lovely old furniture, and art. Buy family members a home if they wanted to move. Learn to drive, reluctantly. Go on various trips, especially a cooking/language course in Italy.
Where do you want to be in 5 or 10 years time?
I've never been someone who has a 5-year or 10-year plan. I have no idea what I want to do. The only things I know I do want are to be living by myself, and to have a job I like and in which I can use and develop my strengths, and which pays me enough to live by myself in a decent and comfortable place, have a bit of a leisure life, and put money in savings each month. But perhaps I should consider living life a bit and doing something way out of my comfort zone like move abroad again for a little while at some point.
What do you have a hard time accepting / what don't you like so much about yourself?
I hate that I am absolutely awful at replying to messages, especially long ones. I often don't know how to respond to something straight away, so I leave it, planning to come back to it and hopefully think of something to say. But then it's a combination of being forgetful, never remembering at a convenient time, and not figuring out things to say. So a lot of the time I either take ages to respond or end up never responding, which has meant that over the years I've lost touch with people who could have been good friends, or potential close friendships have not been able to develop fully. It's awful and I hate it but don't know how to change it.
What's something most people don't know about you?
I used to do archery, and although I'm normally right-handed it turned out that, for archery, I am left-handed. And I'm quite nerdy: I love Star Trek, animated shows like Avatar: The Last Airbender and She-Ra and the Princesses of Power, and Studio Ghibli films.
Do you have a favourite piece of art? If so, what and why?
There are some sculptures I've seen on my travels which I've never forgotten. Bernini ones, particularly in Galleria Borghese in Rome. The craftsmanship and level of skill is stunning, so detailed and realistic, like the flowing of fabrics and the pressing of fingers into skin. Psyche Revived By Cupid's Kiss by Antonio Canova in the Louvre, because I like that story (well, I prefer the Greek version of it). The Angel of Grief by William Whetmore Story in Rome's Non-Catholic Cemetery, because it's achingly beautiful.
What's your ideal day?
Something with a lovely long country walk with nice company and good food somewhere along the line, maybe a visit to a farm shop or farmer's market, followed by relaxing at home with a film in the evening.
What motivates you to work hard?
Hmm. Well, other than fear (of like, y'know, getting told off or something), I'm still trying to figure that out to be honest.
When you were small, what did you want to be when you grew up?
A farmer's wife, hahaha! That's the earliest one I remember. I guess I didn't really know that girls could be farmers, or that you could live in the countryside without being a farmer. I just wanted to live in the countryside, and liked the idea of helping out on the farm, in the garden, growing veggies, cooking in the kitchen, feeding people. Nowadays I just don't really picture myself being a hostess, what with my social difficulties, haha, and I wouldn't want to be the one cooking every day unless I lived by myself.
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Thank you to everyone who asked questions, and thank you for reading these Q&As :)